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Subject:Wear the Lilac 2009 - Donations
Time:02:01 pm
The fundraising for this year's Wear the Lilac for Alzheimer's is complete. A total of $350 was raised this year, and was donated equally to the Alzheimer's Association and the Alzheimer's Research Trust UK.

Donation to the Alzheimer's Association

Donation to the Alzheimer's Research Trust UK

Thanks to everyone who helped make this possible.
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mentalsarcasm
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Time:2009-05-25 07:40 pm (UTC)
Woo hoo! How much did the necklace go for in the end? :)
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auronsgirl
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Time:2009-05-25 07:44 pm (UTC)
$51.00 USD.

I'm considering auctioning off another one next year, and I have an "Octarine" necklace that's been done as well.
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mentalsarcasm
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Time:2009-05-25 08:03 pm (UTC)
Wow, that's fantastic!

I shall have to make a mental note to prepare ahead and make something to donate as well, I make jewellery and cards in my spare time :)
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auronsgirl
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Time:2009-05-25 09:30 pm (UTC)
I appreciate the thought, but I'm not taking donations of items from outside. Lots of people do it on their own and donate the proceeds, so you might want to look into doing that.

I wish I'd known what you were doing on Gaia before it happened, I tried to give info on what Wear the Lilac is, (which means a HELL of a lot to me, since I've put so much work into it and started the fundraiser in the first place), but it was drowned out in all the clammoring for avatar things and the raffle.
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mentalsarcasm
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Time:2009-05-25 10:24 pm (UTC)
Okay, I'll do that then.

I just wanted to raise awareness of Alzheimer's. I saw my Grandad die of Motor Neurone Disease so I know what these things do to people, and to families.

I'm not going to apologise for posting it on the forum because I know it's helped raise awareness of this disease. There are so many people posting their stories, who thought that they were all alone in what they had witnessed, and found out that they weren't. And there are people who didn't know what Alzheimer's does to people, and who have now seen the stories, and know.

To me, awareness comes first, fundraising comes second. There is no point asking people to donate to a charity when they don't even know about the disease.

I'm taking a wild guess that I'm not particularly welcome in the community, at least by you, as your posts come off quite...hostile, stand-offish. It wasn't my intent to offend, or take this away from you, I just wanted to see more people aware of what goes on.

So I do apologise for pissing you off. I think this could be big, if I hadn't jumped the gun and you hadn't now pushed me away in response.

I'll see you next year, with any luck, assuming time does heal all wounds.
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auronsgirl
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Time:2009-05-26 02:40 am (UTC)
First, I'm not a maintaner of the comm, so whether or not you feel welcome or not is not up to me.

To be honest, I *do* feel like you stepped on my toes. Perhaps I shouldn't feel that way, but I do. I think if the shoe were on the other foot and *I* had taken your Gaia thread and used it elsewhere to promote my own version of what *you* were doing without permission, you would feel a bit hard done by too, even though we have the same goals at heart. But you said it yourself in your response, that to *you* getting the thread on Gaia was more important than anything else.

For the entire time, it's only been me and my husband doing all the work (and it must be said, the additional funding) of Wear the Lilac, and it feels like you used it but gave no credit where you got it from. Meanwhile, it's become something...trivial just to get avatar stuff on Gaia Online.

Whether you saw it or not, I just lost my adopted Grandma at the first of this month to stomach cancer and mid-stage Alzheimer's. I was there to watch over her and watch her die because her "real" family wouldn't. I was there to bury her, and I was there to hold the rest of MY family together while we took care of things and fended off the blood relatives coming out of the woodwork to take her things. So if I'm not shouting my story from the rooftops, you can be damned sure that a story is there.

That said, I didn't start the tradition of wearing the lilac on the 25th, PTerry did. I just tried to do something good with it, something that would help. So far, all I've gotten for it is a letter from the Alzheimer's Association telling me I haven't donated enough to suit them. And I'm doing it anyway - for PTerry and for my Grandma, and I will keep on doing it for them regardless of what I get or don't get because every penny I donate might help save someone else's loved one.


Edited at 2009-05-26 03:52 am (UTC)
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mentalsarcasm
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Time:2009-05-27 09:20 pm (UTC)
Sometimes shouting your story from the rooftops is the only way to get people to pay attention though. If others hadn't shared their stories on the thread, then people wouldn't have stopped by to say that they had never realised the impact it has on people (and I can sympathise on the people crawling out of the woodwork, my Grandad's brother didn't show up to the funeral after previous unpleasentness by him at other such events).

I've done plenty of fundraising things in the past. I've done the Race For Life, posted about it on a forum, saw two others sign up after reading my post and ending up getting waaaay more sponsorship from the forums members than I did (one now does several half marathons every year).

2 years ago, when Help For Heroes was a tiny charity that just wanted to buy a swimming pool for some soldiers, I suggested to a bunch of car fans that we should do something to show our appreciation to the servicemen and women who have been injured (your country is a lot better at doing that than we are), after some discussion we decided to get a Nintendo Wii for a rehab centre for injured soldiers, I sat back and watched one guy contact said rehabilitation centre to get all the required info, and another guy set the whole thing up, and then I watched as we raised enough money for several Wii's and some games, with spare cash to give to the swimming pool fund as well.

When Richard Hammond from Top Gear crashed a scarily powerful car at 300 MPH there was talk of Top Gear being cancelled forever, I set up an online petition, posted it out to the previously mentioned car forum, and watched it leap from around 50 signatures, to over 60,000, as people picked it up and passed it on from forum to forum.

The only time I have ever been pissed off about being left behind was when a national newspaper heard about the petition, and some snarky journalist referred to me as "some man". And then I was only pissed because I'm actually a woman, despite my masculine sounding username, and I didn't like her using my petition as part of some "all men are stupid and all motorists are puppy killing bastards and this crash proves it" article.

I'm happy to sit back and watch things grow and take off, sometimes it means I get swamped with work and flooded with emails, sometimes I get left behind and other people are congratulated. But I'd rather see it leave me and become huge, than stay with me and be small, because if it's small then it won't make much of a difference. To me, the world can only be changed if you shout, and in order to be heard, lots of people have to shout.

As you said, we're both on the same side. "We are all floating the same boat. We may try to push each other over the side, but only a maniac would make a hole in the bottom. While we argue about who steers the boat, we don't deny that it's an important voyage" ;)

My next event on Gaia is going to be about MND, I'm still trying to think of something to do off it AFK, whatever it is, I can only hope it will have as many enthusiastic supporters :) (luckily I have until October to think of something).
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auronsgirl
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Time:2009-05-27 10:28 pm (UTC)
You know what? I never claimed to enter into a charity pissing contest with you, and continuing this conversation is looking more and more futile the more we go on.

You're obviously not sorry about taking and claiming credit for someone else's work, becuase you feel you did it in a noble cause. I will simply say that had you asked to use the text and other information you lifted from my page, I would have let you with no problems. And no, taking it down after the fact is not the same thing.

Regardless of your protestations to the contrary, you didn't do one thing to correct the situation after you knew what was what, so it seems very much to me that you're talking out of both sides of your mouth. You're basking in the accolades the Gaia thread has brought you.

I would love to see Wear the Lilac become something big. But just you're now taking credit for all the work you've done in your reply, affording that same courtesy to someone else seems to elude you.

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mentalsarcasm
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Time:2009-05-29 01:36 pm (UTC)
No where in that thread did I say I had started Wear the Lilac day. I said it was started by TP fans, because as far as I knew, it had been. I only heard about it back when Match It For Pratchett started back in...2007? 2008? And when I heard about it the idea was just to wear purple clothes (at least that's as far as I understood it).

I would like to do the thread again next year, because it made a lot of people happy to have somewhere to put their story, and I will see if I can get some sort of permission from the site owners to have your site up there, right at the front (it's not normally allowed because it counts as offsite advertising). I've been on Gaia for years, I know how it works, I know how to get the users interested, I know what will pull them in and what will bore them silly.

I don't want to be your enemy, I don't want you to hate me for the rest of the year, and I don't want this argument hanging over what should be a fun, colourful day.

Tell me what you want me to say next time. How/where you want credit given and anything else that you want.

(Also, I know we're in the middle of a huge argument right now and this is really inappropriate, but I LOVE your James May icon!)
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auronsgirl
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Time:2009-05-29 01:48 pm (UTC)
Feel free to take the icon. The creator, redscharlach is a very talented lady who generously allows all comers to take her icons. They're wonderfully chibi. You can find a whole section of Top Gear icons in her journal. I just took Cap'n Slow because he's my favorite.

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[icon] Wear the Lilac 2009 - Donations - How do they rise up?
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